The Harold P. Freeman Patient Navigation Institute

As Featured on ABC News’ Nightline
Apply Today!

Resources

Communication Resources
Legal Resources
Financial Navigation Resources
Outreach Navigation Resources
Diagnostic Navigation Resources
Treatment Navigation Resources
Survivorship, Rehabilitation and Supportive Care Navigation Resources

Communication Resources

Source Content
Screening Cross-cultural communication tools and resources Topics in health literacy for health professionals and media Cultural and linguistic information to help close disparities in health Differences between the communication styles of men and women by a sociolinguist
Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. Epstein RM, Street RL Jr. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. National Cancer Institute, NIH Publication No. 07-6225. Bethesda, MD, 2007.

Click here for details...

Lays the foundation for innovative research in patient-centered communication in oncology and other illness settings; rich references for existing research with practical suggestions and case studies
↑ Back to top

Legal Resources

Source Content
Legal Guide for Healthcare Professionals Defines federal laws related to cancer, but content applies to many chronic diseases; also includes legal variations by state
Patient Advocate Foundation Provides mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses
Law Help Helps low and moderate income people find free legal aid programs in their communities, and answers to questions about their legal rights
American Bar Association Guides you to a list of resources in your state and offers various public resources including links to international legal information
Cancer Legal Resource Center
1 866-843-2572
CLRC@LLS.edu
Provides free, national, confidential information and resources on cancer-related legal issues to people with cancer, their families, friends, healthcare professionals, employers and others coping with cancer
LegalHealth Provides direct legal services to individuals living in New York City and technical assistance to organizations with cancer legal programs or wanting to start one
Pro Bono Programs Lists free legal programs by state
↑ Back to top

Financial Navigation Resources

Source Content
Legal Guide for Healthcare Professionals Defines federal laws related to cancer, but content also applies to many other chronic diseases. It also includes legal variations by state.
Insurance Program for Kids Provides information on federal and state together health insurance coverage for children through Medicaid and the Children's Health Insurance Program (CHIP).
State Pharmaceutical Assistance Program Official government site for Medicare and Medicaid information that includes a tool to search the states for assistance with the purchase of medication.
Free Travel for Patients Arranges free flights to treatment centers, using the empty seats on corporate aircraft flying on routine business.
State Health Data Provides free, easy, up-to-date health data on: employer, Medicare, Medicaid, individual, uninsured and other public coverage.
↑ Back to top

Outreach Navigation Resources

Source Content
Communication Research on the amygdala's role in distrust response.

How change registers pain

Cross-cultural communication tools and resources

Topics in health literacy for health professionals and media

Cultural and linguistic information to help close disparities in health

Differences between the communication styles of men and women by a sociolinguist

Screening
  • National Cancer Institute's description of specific tests
  • American Cancer Society guidelines for early detection
Outreach Studies
  • A randomized controlled trial using patient navigation to increase colonoscopy screening among low-income minorities. Christie J, Itzkowitz S, Lihau-Nkanza I, Castillo A, Redd W, Jandorf L. J Natl Med Assoc. 2008 Department of Medicine, Mount Sinai School of Medicine, New York, NY
  • Tailored navigation in colorectal cancer screening. Myers RE, Hyslop T, Sifri R, Bittner-Fagan H, Katurakes NC, Cocroft J, Dicarlo M, Wolf T. Med Care. 2008 Sep Department of Medical Oncology, Thomas Jefferson University, Philadelphia, PA
Studies on the effectiveness of patient navigation
↑ Back to top

Diagnostic Navigation Resources

Source Content
Communication
  • Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. Epstein RM, Street RL Jr. Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. National Cancer Institute, NIH Publication No. 07-6225. Bethesda, MD, 2007.

    Click here for details...

  • The Expression of Emotion Through Nonverbal Behavior in Medical Visits: Mechanisms and Outcomes Debra L Roter, DrPH, Richard M Frankel, PhD, Judith A Hall, PhD, and David Sluyter, EdD

    Click here for details...

  • Breaking bad news: a patient's perspective. Lauren Dias, Bruce A. Chabner, Thomas J. Lynch, Jr., Richard T. Penson; Department of Medicine, Division of Hematology-Oncology, Massachusetts General Hospital, Boston, MA

    Click here for details...

Lays the foundation for innovative research in patient-centered communication in oncology and other illness settings; rich references for existing research with practical suggestions and case studies.

Reviews existing research; proposes that emotional context of care is especially related to nonverbal communication and that emotion-related communication skills are critical to quality care.

Discusses issues of support, abandonment, and how hope is conveyed. It also reviews the literature that informs good clinical practice in breaking bad news.

Diagnostic Exams and Procedures

What You Need To Know About Cancer

National Cancer Institute's information about various types of diagnostic exams and procedures.
Navigation Research

  • National Cancer Institute Patient Navigation Research Program: methods, protocol, and measures Freund KM, Battaglia TA, Calhoun E, Dudley DJ, Fiscella K, Paskett E, Raich PC, Roetzheim RG; The Patient Navigation Research Program Group. Cancer. 2008 Oct 24.
  • Improving follow-up to abnormal breast cancer screening in an urban population. A patient navigation intervention. Battaglia TA, Roloff K, Posner MA, Freund KM. Cancer. 2007 Jan 15.
Studies on the effectiveness of Diagnostic and Treatment Navigation.

Research done on a Patient Navigator intervention among inner-city women with breast abnormalities.

↑ Back to top

Treatment Navigation Resources

Source Content
Communication

Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering. Epstein RM, Street RL Jr. National Cancer Institute, NIH Publication No. 07-6225. Bethesda, MD, 2007.

Click here for details...

Lays the foundation for innovative research in patient-centered communication in oncology and other illness settings; rich references for existing research with practical suggestions and case studies.
National Coalition of Oncology Nurse Navigators A collaborative network for professional development among oncology nurse navigators and all healthcare disciplines locally, regionally and nationally.
National Register of Health Service Providers in Psychology Psychologist referral website to promote consumer access to more than 12,000 professionally screened psychologists in the United States and Canada.
Social Work National non-profit organization that provides free, professional support services for anyone affected by cancer. A network of affiliate clubhouses where men, women and children living with cancer, as well as their friends and families, meet to learn how to live with cancer, whatever the outcome.
Treatment  
Information about treatment methods, facilities and research.

Oncologist-approved cancer information.

Navigation Research

National Cancer Institute Patient Navigation Research Program : methods, protocol, and measures Freund KM, Battaglia TA, Calhoun E, Dudley DJ, Fiscella K, Paskett E, Raich PC, Roetzheim RG; The Patient Navigation Research Program Group. Cancer. 2008 Oct 24.

Studies on the effectiveness of diagnostic and treatment navigation.
↑ Back to top

Survivorship, Rehabilitation and Supportive Care Navigation Resources

Source Content
Medical, financial, legal and psychosocial information, including patient stories, planning templates and tools to assist patient navigators.
Medical, financial, legal and psychosocial information, including patient stories, planning templates and tools to assist patient navigators.
Psychosocial impact of recurrent cancer

Karen Burnet, Lorraine Robinson
European Journal of Oncology Nursing-March 2000 (Vol. 4, Issue 1, Pages 29-38, DOI: 10.1054/ejon.1999.0033)

People who are diagnosed with recurrent cancer recognize that it is a time of re-evaluation, transformation and redefinition.
Academy of Oncology Nurse Navigators Provides oncology nurse navigators with resources on patient care, continuing education and dialogs with their peers.
National Coalition of Oncology Nurse Navigators Provides networks and information to nurse oncologists and partners in navigation.
Association of Oncology Social Workers A non-profit, international organization that provides conferences, continuing education and networking.
↑ Back to top
increase text size
Print this page
The Gold Standard
The concept of patient navigation was founded and pioneered by Harold P. Freeman in 1990 for the purpose of eliminating barriers to timely cancer screening, diagnosis, treatment, and supportive care. A critical window of opportunity to apply patient navigation is between the point of an abnormal finding to the point of resolution of the finding by diagnosis and treatment.

Currently the patient navigation model has been expanded to include the timely movement of an individual across the entire health care continuum from prevention, detection, diagnosis, treatment, and supportive, to end-of-life care.